Ichthyosis News

Teenager cruelly called 'snake lady' due to rare condition that leaves her covered in SCALES - The Sun



The Sun
 
Teenager cruelly called 'snake lady' due to rare condition that leaves her covered in SCALES 
The Sun
A TEENAGER cruelly called snake lady has to smother her body in moisturiser every day because of a rare condition that leaves her covered in scales. Floraine Nalugon, 17, suffers from lamellar ichthyosis, a rare condition that stops her skin shedding ...
Teenager cruelly dubbed 'snake lady' due to rare skin condition which leaves her covered in scales Mirror.co.uk

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Teen with rare skin condition cruelly dubbed 'snake lady' vows to defy her bullies - Yahoo7 News



Yahoo7 News
 
Teen with rare skin condition cruelly dubbed 'snake lady' vows to defy her bullies 
Yahoo7 News
The teen suffers with ichthyosis, a condition where a faulty gene affects the rate at which the skin regenerates causing a build-up of rough, scaly skin. Real life 'Mermaid Baby' battles rare scales condition · Broncos fan reveals his inspiration ...
Teen dubbed 'snake lady' over rare skin condition NEWS.com.au

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You will cry after seeing the skin of this 'mermaid baby' - Health24



Health24
 
You will cry after seeing the skin of this 'mermaid baby' 
Health24
It is extremely rare, but babies who are born with harlequin ichthyosis have thick, broken layers of skin and may appear deformed, but it is actually the tightness of the skin which pulls at features like the eyes, mouth and ears. The tightness of skin ...

 


Prince Harry meets 'amazingly brave' children with serious illnesses - Telegraph.co.uk



Telegraph.co.uk
 
Prince Harry meets 'amazingly brave' children with serious illnesses 
Telegraph.co.uk
Marni Ahmed, a nine-year-old who has rare skin condition Harlequin's Ichthyosis, told him that it had been very good, but that the train journey had "a lot of stops". "That's quite a mouthful," Harry told him after Marni told him the name of his ...
Prince Harry meets poorly kids at WellChild awards - and has a kebab revelation when quizzed by boy, 9 Mirror.co.uk
Prince Harry has NEVER had a kebab but scoffs THIS treat for breakfast Daily Star

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Teen dubbed the 'human snake' for shedding skin finally cured ... - New York Post



New York Post
 
Teen dubbed the 'human snake' for shedding skin finally cured ... 
New York Post
A teenager dubbed the ?human snake? who shed her skin every six weeks for her entire life has been miraculously cured by European doctors in a...
'Human snake' India teen with skin shedding disease cured | Daily ... Daily Mail
Teenager dubbed the 'human snake' after shedding skin every six ... The Sun

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Charity non-uniform day held at Hartlepool school in honour of brave boy - Hartlepool Mail



Hartlepool Mail
 
Charity non-uniform day held at Hartlepool school in honour of brave boy 
Hartlepool Mail
By contrast, in Ichthyosis the scaling is continuous and affects the whole body. Year 5 pupil Ewan Stoddart, who is in Class 11 at Throston Primary School, suffers from Ichthyosis. Headteacher Mark Atkinson said: ?Ewan is a very brave boy who is happy ...

 


An Indian Teenager's Rare & Painful Skin Condition Has Finally Been Cured - Refinery29



Refinery29
 
An Indian Teenager's Rare & Painful Skin Condition Has Finally Been Cured 
Refinery29
If you've ever struggled with eczema or psoriasis, you know what it's like to literally feel uncomfortable in your skin every day. And for Shalini Yadav, that's a reality she's dealt with for her entire life. The 16-year-old has a rare condition called ...

 


A voyage for a cure - The Hindu



The Hindu
 
A voyage for a cure 
The Hindu
Spain to her rescueShalini Yadav, a teenager from Chhatarpur district in Madhya Pradesh, and afflicted with a rare disorder, lamellar ichthyosis (fish-like scales), from birth, is to undergo treatment for free at a hospital in the Spanish city of ...

 


New Data Confirms Isotretinoin's Effectiveness in Treating Ichthyosis - Rare Disease Report



Rare Disease Report
 
New Data Confirms Isotretinoin's Effectiveness in Treating Ichthyosis 
Rare Disease Report
The disease is a family of at least 28 different hereditary skin disorders, and the severity of symptoms can vary from the mild (ichthyosis vulgaris; may be mistaken for normal dry skin) to life-threatening (harlequin type ichthyosis). According to the ...

 


Yale team finds new genetic cause of ichthyosis, identifies Accutane as potential treatment - FierceBiotech



FierceBiotech
 
Yale team finds new genetic cause of ichthyosis, identifies Accutane as potential treatment 
FierceBiotech
While most instances of the skin disorder ichthyosis have a known genetic cause, some cases are still unexplained. Using exome and whole genome sequencing, Yale scientists discovered a new mutation and identified a potential new treatment?the acne ...