Moyamoya Syndrome News

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'Love opens your eyes' - Valentine's Day is more than hearts and flowers for Jessie and Jeremy - Ottawa Citizen



Ottawa Citizen
 
'Love opens your eyes' - Valentine's Day is more than hearts and flowers for Jessie and Jeremy 
Ottawa Citizen
... included both devastating lows ? such as Jessie being diagnosed with a rare Moyamoya disease, suffering strokes and undergoing brain surgery in 2016 ? and highs, such as getting engaged last Valentine's Day. Through it all, they've been ...

 


MIT Federal Credit Union embraces the Read with Malcolm initiative - MIT News



MIT News
 
MIT Federal Credit Union embraces the Read with Malcolm initiative 
MIT News
The program and its team of dedicated supporters are presently committed to funding several pediatric research projects at Boston Children's Hospital, including: moyamoya disease, Sturge-Weber syndrome, pediatric brain tumors, and cerebral palsy. In ...

 


Mother reveals her boy, 10, is a 'ticking time-bomb' and could die if he blows a balloon up or gets too excited - Daily Mail



Daily Mail
 
Mother reveals her boy, 10, is a 'ticking time-bomb' and could die if he blows a balloon up or gets too excited 
Daily Mail
Mrs Kilkenny explained: 'Moyamoya is quite rare, so there aren't many specialists here. 'We were told to just watch and wait and take him to hospital if there were signs of any more strokes, but the idea of just waiting for it to happen broke my heart ...

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After having brain surgery, Murfreesboro girl creates hope with bracelet business - The Daily News Journal



The Daily News Journal
 
After having brain surgery, Murfreesboro girl creates hope with bracelet business 
The Daily News Journal
Soon after, she was diagnosed with moyamoya disease, which is also a rare and progressive cerebrovascular disorder caused by blocked arteries at the base of the brain in an area called the basal ganglia. Both those issues cause Hannah excruciating ...

 


Moyamoya: A disease well fought in Bangladesh? - Dhaka Tribune



Dhaka Tribune
 
Moyamoya: A disease well fought in Bangladesh? 
Dhaka Tribune
Even though the disease is quite unknown in Bangladesh, there are quite a number of patients who have been treated successfully at the National Institute of Neurosciences and Hospital (NINSH) in Dhaka's Agargaon. Until now, 30 patients have undergone ...

 


After two brain surgeries, a loss of language and a breakup, beat producer Tokimonsta reflects on a tough few years - Los Angeles Times



Los Angeles Times
 
After two brain surgeries, a loss of language and a breakup, beat producer Tokimonsta reflects on a tough few years 
Los Angeles Times
For the past decade, Lee, 30, had made music under the moniker Tokimonsta, and during a recent afternoon at her Koreatown apartment she recalled those traumatic months when, after establishing herself as a globe-trotting force at dance music festivals ...

 


Firefighter Rob Loring runs marathon for fellow worker's daughter - Tewksbury town crier



Firefighter Rob Loring runs marathon for fellow worker's daughter 
Tewksbury town crier
The program has raised $5.4 million total, all of which has gone to fund research activities for Sturge-Weber Syndrome, Moyamoya disease, Cerebral Palsy and pediatric brain tumors. A major part of the program's fundraising involves pairing Boston ...

 


Walpole's Justin Doo wins Humanitarian Award - www.hometownweekly.net (press release)



www.hometownweekly.net (press release)
 
Walpole's Justin Doo wins Humanitarian Award 
www.hometownweekly.net (press release)
Walpole's Justin Doo, a graduate of Xaverian Brothers High School, has been awarded the Corey C. Griffin Humanitarian Award by Boston Children's Hospital. Doo's decade-long mission to drive awareness and funds to the cause of moyamoya disease was the ...

 


David's battle: 'Who is supposed to take care of him?' - Radio New Zealand



Radio New Zealand
 
David's battle: 'Who is supposed to take care of him?' 
Radio New Zealand
An Auckland mother fears her four-year-old son will be confined to the corner at his crèche, unable to learn, because of what she says is a lack of teacher aides for children with disabilities. Lucy Bennett and her son David, who has neurofibromatosis ...

 


Brain Surgery Stole Tokimonsta's Ability to Make Music. Here's How She Got It Back - L.A. Weekly



L.A. Weekly
 
Brain Surgery Stole Tokimonsta's Ability to Make Music. Here's How She Got It Back 
L.A. Weekly
She was diagnosed with moyamoya, a rare, progressive vascular disorder in which the arteries that provide blood flow to the brain, including the vital carotid arteries, begin to narrow. Untreated, the disease is fatal. In the three months following the ...